This year, I wanted to take things a tiny step forward with blogging. It’s a tiny step, but a step in the direction. For the entire 28 days of February, we will feature a new story of CHD warriors, warrior angels, with blogs and Facebook page links to help circulate the growing number of those affected by CHDs across the United States. And if I’m really lucky, I’ll get a few stories from across the globe. Please visit daily for stories of heartfelt struggle, inspiration, hope, and love. Welcome to Heart Month here at Queen of Hearts!
Warrior Aurora’s mom says:
“Aurora was diagnosed prenatally at 22 weeks gestation with a rare Congenital Heart Defect (CHD) called Congenitally Corrected Transposition of the Great Vessels. She will need a transplant, possibly a pacemaker. She sees a great Cardiologist at MCV (VCU Richmond) who has high hopes for her.
Since birth on June 7th 2006, Aurora has continued to show symptoms of heart failure, such as a growing hole between the top 2 chambers of her heart, a tricuspid valve regurgitation, Stage I heart block, and unexplained arrythmias. She also has an unusually large appetite, thought to account for so many calories lost pumping a heart that doesn’t want to pump. She routinely wears portable EKG machines to closely monitor her.”
Here are some excellent statistics that Aurora’s mom has thoughtfully put together:
♥As many as 40 infants per 100,000 live births are affected by congenitally corrected transposition of the great vessels; this is fewer than 1% of all congenital heart defects.
♥This disorder is reported in 0.5% of patients with congenital heart disease, and the literature reports fewer than 1000 cases.
Please visit (Princess, sorry she is such a true princess that it’s hard to not type that) Aurora’s Facebook page, “like”, and follow her fight with CHD.
You’ll be so glad you did. She is a courageous kiddo with a spirit that can’t be matched!