Presenting our 5th warrior, Janelle!

We are pleased to introduce to you Miss Janelle. Or Princess Janelle. I like both. They both have a great ring to them. Amanda is Janelle’s mom and I have to tell you, these two ladies melt my heart. With every heart family I have connected with online in the huge world of CHDs, there is a distinct connection that I’ve been fortunate to make. My most favorite part about knowing this family is that Janelle and Natalie are very similar in so many ways. They both, for some reason or another, seem to thrive with the defects that they were born with. Janelle is tall (the size of at least a 6 year old and she’s not even 5 yet!) and she has amazing energy and keeps her family busy. Could you ever ask for anything better? Here is Janelle’s story as told by her mommy, Amanda:

“Our bouncy baby girl, Janelle Makenna, was born on March 31, 2008. She was full term, 8 pounds, 4 ounces, 19 3/4 inches long. Janelle scored a 9 on the APGAR. She would have gone home as a healthy baby girl had we not known the truth. She was diagnosed with a Double Inlet Left Ventricle 4 months before she was born during a routine ultrasound. She was diagnosed with four other heart defects after birth. She also has Transposition of the Great Arteries, Aortic Stenosis, Small Aorta and Coarctation of the Aorta. Her first open heart surgery (Norwood) was at a week old. Her second open heart surgery (Glenn) was at 4 months, 4 days old. The third surgery (Fontan) was at 37 months old. Janelle is a patient of Le Bonheur Childrens in Memphis, TN and UAB in Birmingham, AL She is currently seeing a cardiologist every 6 months. Her current medications are a baby aspirin every other day along with a daily Enalapril. She loves school and has many friends. Her activities include karate and gymnastics.”

Look at this beautiful kiddo:

1 month

Janelle at 1 month old. Beautiful baby girl!


Check her out at 6 months old! OH so adorable.

18 months

18 months old and on the move!

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Look at how quickly she’s growing!

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Janelle at her most recent. Isn’t she amazing?

Janelle is 1 in 100. But she’s also one in a million for being so special.

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