blogs, books, and support

Below is a categorized list of some resources that have been incredibly helpful for our family for the last 5 years. This is in addition to the little photos you’ll see on the left side of The Queen’s home page. This list will definitely keep growing. It always does. So I give to you many more resources!

GENERAL SUPPORT, INFORMATION, AND EVENTS

Mended Little Hearts

It’s My Heart

The Children’s Heart Foundation

Whole Hearts Foundation

CHD Coalition

Little Hearts Matter (UK)

Helen B Taussig Children’s Heart Center– Johns Hopkins (Dr. Everett is the director and also completed Natalie’s 1st heart catheterization!)

American Heart Association

Congenital Heart Defect Families Association (CHD Families)

CHD-BASED BLOGS THAT OFFER HOPE

Amanda Rose Adams

Hope 4 Tiny Hearts

BOOKS THAT OFFER HOPE & HELP

Heart Warriors by Amanda Rose Adams

The Other Kid by Lorraine Donlon

The Congenital Heart Information Network’s list of books

It’s My Heart (our bible during all surgeries)

RECOMMENDED CHD FAMILY BLOGS

With Every Little Beat…

Straight From The Heart

The Lihn Family

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