Tag Archives: health plan

8 days ago..

Ahhh! So sorry for the lack of updates. Broken promises. Broken plans. Yikes. I intended to update this blog for every day in August. I had a little sliver of doubt at the beginning of the month. Once I got going, blogging everyday, I started to see our calendar fill up. Some days with plans oozing out of the huge box with that day and it’s little ‘ol number. The sliver of doubt began when I saw the beginning of school for Natalie, appointments, and the start of school. School- for everyone! Come one! Come all!

Our household currently houses 4 occupants and 4 students. Check us out! eehhh? Right??

But most importantly, our dear Natalie began the big K on Monday. This year, the school did a “soft start” where each child could pick either that Monday or Tuesday to begin class and then having Wednesday as the first day of a full class. If I heard right, I think there are about 21 students in her class. For our county’s standards that’s not too shabby.

But again MOST importantly, how did she do?

Fantastically! That’s how. She had a quick moment this morning where she asked, “Mommy, do I really have to go to school today? I’m so tired.” I think we all understand the exhaustion in that question. Her brother, who is in 1st grade, asked that question quite a few times during his entire kindergarten year. I’m kind of shocked that she waited to ask all the way on a Friday morning. Tuesday was usually her brother’s day to ask me that question.

The school has been pretty awesome about keeping the teachers in the loop about Natalie’s health plan. In fact, that’s another shocker for me, because I’m so new to this whole kid-in-school-all-day-with-heart-condition-thing. Brand new. She had a year of preschool but by the time I got home from dropping her off it was time to pick her up. And that was only 3-4 days a week. This time, it’s real. Like for real, for real. The school has been very good about taking care of Natalie so far. The only small issue we’ve had was some heat exhaustion the other day, but even I failed to see how hot it really was outside. Throw into the mix 3 recesses (2 of which I didn’t know about) and well, you get a little bit of heat exhaustion. She fell ill by the end of Wednesday, but once I pumped her full of even more water and a snack she was feeling normal again. The school didn’t do anything wrong. They kept supplying her with water and she kept downing it. When her teacher would ask, “Natalie are you okay?” several times, Natalie (just like her mom) would brush it off and just say “I’m fine”. She even looked fine, until we started our walk home.

Now we know to cut her recess time down a little bit on hot days. The 3rd recess is being dropped off soon so that won’t matter. It’s the lunch recess that’s triggering, I think, the biggest problem. For days like today, where the heat is just too much, Natalie will get to spend it inside either with the teacher or at the office, reading, coloring, and hamming it up with the faculty.

Wanna see some photos? Oh you know that’s why you’re here:

Natalie with her big brother! I really need to compare these 2 to last years’ photos. My god.

And there they go… off to new adventures.. off to experience the school life. A life of slightly crappy school lunches, optimistic dread, the sound of bells, the smell of pencils, glue sticks, and copied paper. Just like last year, the new students have the “deer caught in headlights” look. Natalie was smiling and then waved after I took this photo. Ham. Pure ham.

health plan.

When I met with the school nurse.. well..the district-wide nurse a few months ago I was so happy to get the elementary school prepared about Natalie. She’ll be the only child in her school with a severe CHD, let alone half of a heart, so I thought “yup, let’s do this”. Everyone is always really nice to talk to which makes this anxiety-filled mom feel at ease. When I first sat down with the nurse she immediately shows me all of the printouts she acquired about single ventricle hearts and Tricuspid Atresia. She confessed to have never met a child with a CHD like this and I told that definitely didn’t surprise me.

I spent an hour talking with the nurse and we drew up a really great health plan for Natalie. This plan stays within the school system and follows Natalie as she climbs up to each new grade. We can revisit the plan anytime and change things if needed. Plus, the principal, assistant principal, everyone at the school is made aware of the health plan. More easily put- every major official at the school is prepared. The nurse and I listed every single tiny thing we could in the health plan. I knew that a few weeks later we’d be seeing the cardiologist for Natalie’s 6 month heart check-up so I let the doc take a good look at it. She scanned the document for a good minute or so..”Looks great! I wouldn’t change a thing!” I thought I listed too much and she said that’s what she likes about it. The cardiologist gets a little worried when not enough is listed on these health plans for these CHD survivors.

Sorry for the bad copy. The school printer was on the fritz that day. But this gives you can idea of what’s included. We made sure to include things that would help identify what Natalie’s normals are and what’s definitely not normal. The school’s front office secretary confessed that she’s a little nervous. You see, she would be the first one to care for Natalie if she comes to the office. And she’s in charge of making parent phone calls. So I was warned that I may get several in the first month or so. This is why I’ll be taking online courses at home, only a few short blocks away.

Luckily, Natalie will have the same kindergarten teacher that her big brother had. She is very comfortable with Natalie and is well aware of her “special heart”. I think that’s what’s going to make it or break it. I don’t think it will break it.

I found out that same day of planning this with the nurse, a 7th grader in the local middle school and their parents just completed their health plan. Want to know what the disability was?

Tricuspid Atresia.

Yup! So maybe it’s not as uncommon as I thought. Crazy isn’t it?

kindergarten drama.

In exactly 2 weeks The Queen begins kindergarten. This means two things:

A. I’ll have 2 children in full day elementary school (par-TAY!)

B. Natalie will be off in her own new world enjoying new things without me.

okay… let’s throw a C in there…

C. The Queen will not be The Queen in her classroom.

So let’s revisit each one of these points in-depth shall we?

A. This means that I will be able to take a couple of college courses without as much interruption. I’m already signed up for only 2 classes and both are online. The point of staying at home was to ease back into college without killing myself and let my children and husband see me go nuts. It was also because the elementary school is only a couple of small blocks away. It ensures that I’m close by in case the first month or so of Natalie’s new school adventure starts out rocky. We completed a Health Plan as opposed to a 504 Plan. Tomorrow’s post will explain more about those options in case anyone needs some information. The school already stated that they are a little “nervous” with Natalie which makes me even more nervous. They warned me of the extra trips to the school and phone calls until they are comfortable with Natalie’s “normals”.

But I do feel like this school is totally capable of taking care of Natalie. If I didn’t I’d have thrown in the towel and home-schooled her.

B. Natalie needs to be in her own new world enjoying new things without me. That does not make me sad one bit. Especially after this summer.

C. The Queen (thinks) that she rules her household. But The Queen will be surrounded by other girls who rule their households, too. This will probably result in some minor disputes. But all in all, I think The Queen will always have her thrown waiting for her once she returns home from school. ; )