“As a family, we have been on one long journey together and have learned so much from this amazing little boy.” -LaShawn’s mom
“My son LaShawn was born in 2008 with HLHS / hypoplastic left ventricle double outlet. He is now four years old and has been thru a lot. He has a total of 14 surgerys tucked into his belt. They include four open heart surgeries. Two of those open heart surgeries included the the PA Banding (pulmonary artery banding). His first banding sliped blocking blood flow to his lungs and causing him to be placed on a vent. Three days later they had to open him up and redo the banding. LaShawn has had the Glenn Shunt at 6 months old and did much better this time and was home with in a week, growing and being active. LaShawn then had the Fontan in May of 2012. He has also had many other surgeries including cathaterizations of the heart as well. He also needed a feeding tube. He was in the hospital for 5 weeks and didn’t come home until the tube placement was complete. He’s also had an operation to fix his feeding tube site when he no longer needed the feeding tube. He has taught us what love and pain truly are. LaShawn has taught us compassion and filled us with a need to help others in any way we can.”
A little warrior getting through open heart surgery. There is tons of fight inside this little guy.
LaShawn with his mommy : )
How beautiful is this kid? You can tell that he has a beautiful family by his side, as well. And as us members of a “heart family” know very well, support makes all of the difference. LaShawn receives strength from his biggest supporters and I can definitely attest to this- his family receives strength from LaShawn as well. Completely amazing and so inspirational. Please visit LaShawn’s Facebook support page:
Go “like” and show some love and support!! Keep kicking CHD’s butt big guy!!
Posted in Heart Month 2013
Tagged amazing people, CHD awareness, community, feeding tube, Heart Month, HLHS, inspiration, PA banding, photos, post-Fontan life, scars, the Fontan, the Glenn
How amazing is this photo that Hannah’s mom, Erica, put together??
In case I didn’t enlarge it enough (WordPress is tricky like that) I’ll repost what it says:
“Hannah was born July 28, 2006 with 10 of 35 heart defects and is truly a miracle! Hannah’s has essentially a half a heart on the wrong side facing backwards with holes plumbing in all the wrong places. She also has another rare condition called Situs Inversus Totalis where all of her organs are on the opposite side. She had her first open heart surgery (Norwood) at 3 days of age here at Arnold Palmer. She came home 28 days later. She had her second surgery (Bidirectional Glenn) in January 2008, had her last of the 3 surgeries (Fontan) July 2011. Where from that point she has blossomed in her heart health! She is now medicine free and is full of energy. She loves her Mickey & Minnie, riding her bike, dancing, and has a desire to enjoy life that is truly inspiring. She loves meeting others just like her at the Precious Little Heart Meetings (support group her and I started for other kids/parents affected with CHD) and visiting her doctors and nurses up in the CVICU at APH. She loves participating in the Heart Walk and telling ANYONE about her booboos on her heart!
Share Hannah’s story and spread the word of CHD= #1 birth defect and cause of death within the first year of life. More children are born each year with CHD than ALL forms of childhood cancers combined!”
Here’s another message from Hannah’s mom (a very detailed list of her heart defects):
“HPRH = Hypoplastic Right Heart Syndrome
ASD = Atrial Septal Defect
VSD = Ventricle Septal Defect
TGA = Transposition of the Greater Arteries
PDA = Patent ductus arteriosus
Interrupted Aortic Arch
Hypoplastic Aortic Valve and Ascending Aorta
MTHFR mutation = Methylenetetrahydro folate reductase (MTHFR) blood
Situs Inversus Totalis
– organs on the opposite side
Surgeries to Date:
Norwood 3 days old
Glenn 6 months old
Non-Fenestrated Fontan 4 year 10 months old”
What a beautiful princess warrior!! I agree with Hannah’s mom, you can tell that she has a strong thirst for life. It’s incredible. Truly incredible. Rock on, Hannah!!
Posted in Heart Month 2013
Tagged amazing people, aortic stenosis, ascending aorta, ASD, CHD awareness, community, dextrocardia, Heart Month, HRHS, hypoplastic aortic valve, inspiration, interrupted aortic arch, Norwood, PDA, photos, post-Fontan life, scars, TGA, the Fontan, the Glenn, Tricuspid Atresia, VSD